Anti Phospholipid Syndrome (also known as Antiphospholipid Syndrome or Antiphospholipid Antibody Syndrome, APS, APLS or even Catastrophic APS and now Systemic Antiphopspholilid Antibody Syndrome - So many names for just one disease)
This site is intended as a research resource for medical professionals, patients and families who wish to learn more about a little known lethal, yet treatable, blood disorder that
causes hypercoagulation.
Early signs of this disease
are often diagnosed as many different disorders before being correctly diagnosed. This inability to correctly diagnose is not due to any form of medical inefficiency, but is due to the disease only being recognised in
the last 9 years, and it's ability to mimic the symptoms of a number of well known and documented diseases.
Even though I have a clinical diagnosis of APLS, wear an SOS Talisman bracelet and carry a medical
fact card on me, in an emergency the Accident and Emergency doctors still insist on treating the possibly catastrophic events as a Migraine.
I hope this site will help to raise the awareness of many doctors
and health care professionals, and give help and the comfort of understanding the problems to patients and their families.
Research into APS is still being completed at a number of hospitals and research
centres worldwide. The information within this site has been collected from their sites and from weekly updates from Medscape.com
I would be interested to hear from patients and doctors who have experience of Anti Phospholipid Syndrome (APS) and its associated disorders.
If these pages have been of interest or help please e-mail me at Eddie@apls.tk
with your comments and reasons for visiting the site, as this will help in assessing the need for updates.
Do you long to talk to others who share your problems from APS, do you have questions you cannot get answered, does your doctor speak to you with long latin names and you are confused? If the anser to any of these is yes, then come over to http://health.groups.yahoo.com/group/saps_support/ We would love to hear from you, and give you all the help, support and inmformation you need.
If you have found this site helpful and are a return visitor, you will notice that there are a number of new additions in the menu of diseases. These have been added as a direct result of the APLS Survey, where it was noticed that many of these diseases are shared by patients with APLS. I will continue to add new pages as I research them, and any help with links or information would be greatly appreciated.
Are
you having trouble finding a doctor who
knows about APS or a hospital that has a specialist Consultant for APS?
www.specialistinfo.com, a site
created not only for Doctors but also to provide invaluable information about
Consultants to Healthcare Professionals, potential patients and their families.
As a registered user of this website, you will be able to see the scope of
the site and obtain some useful information. However, full access is only
provided to Subscribers.
Subscribers can see the full index of Consultants' special interests
as well as Consultants' contact details and clinic times
and
even their
clinic waiting times.
Subscription costs £99 per year per user. Discounts are available for
multiple users, with a special fee for potential patients where
access to the site can be obtained for a mere £2.98 for 2 hours. To subscribe, please contact Specialist
Info:
by telephone on
01423-505024/562003 and ask for Subscription Enquiries
Do
you wear spectacles and find it difficult or expensive finding clip-on
sunglasses?
If
the answer is YES then your problems are over.
For
clip-ons to convert your glasses to sun, night
driving, anti-glare or coloured mirror glasses take
a look at Polarized
Optics.
Their speciality is that they produce clip-ons
to fit most frames.
You
won't be disappointed, I wasn't. They also specialize
in full sun, night driving, mirrored, anti-glare, sport
and fit-over spectacles.
Do you long to talk to others who share your problems from APS, do you have questions you cannot get answered, does your doctor speak to you with long latin names and you are confused? If the anser to any of these is yes, then come over to http://health.groups.yahoo.com/group/saps_support/ We would love to hear from you, and give you all the help, support and inmformation you need.
CollectiveMed - Bills itself as the premier source
for medical PDA hardware and software on the Internet.
handheldmed.com - Features an
extensive library of popular clinical reference software converted for use on
Palm OS® and Pocket PC handhelds.
pdaMD.com - The leading cross-platform site dedicated to handheld
computing in medicine, featuring original articles, product reviews, and active
discussion forums.
Do you long to talk to others who share your problems from APS, do you have questions you cannot get answered, does your doctor speak to you with long latin names and you are confused? If the anser to any of these is yes, then come over to http://health.groups.yahoo.com/group/saps_support/ We would love to hear from you, and give you all the help, support and inmformation you need.
AMSA - The American Medical Student
Association (AMSA) has a section of its Web site devoted to the use of PDAs in
medical education.
APS Foundation of America Inc.
- This site, hosted by the APSFA offers a selection of free documents, news items, research material and advice on finding doctors proficient in APS.
Cambridge University - "Project Palm"
aims to use handheld computers to create a collaborative learning environment
for Cambridge Medical Students.
Dalhousie
University - Extensive and well-organized site
designed to provide recommendations for the use of handhelds in medical
education, maintained by the Dalhousie University Faculty of
Medicine.
Intro to
Palm - The "Ectopic Cortex", a collection of
links and information maintained by the Duke University Department of Family
Medicine.
JEFFLINE - Palm/Handheld Support for Clinicians - The Clinical Informatics program at Thomas Jefferson University
provides training and support for clinicians on use of handheld computers. Palm
OS® is the handheld operating system of choice at TJU and TJU
Hospital.
Johns Hopkins Medicine - This page of
PDA resources maintained by the JH Office of Academic Computing includes the
usual links, plus some original FAQs.
Medical College of Wisconsin - Check
out their site for details on PDA use during third-year clerkships, electronic
forms, popular applications for clinicians, tutorials, and
more.
Medical
University of South Carolina - a.k.a. "PDAs in
Health Care", a guide to Personal Digital Assistants for faculty, students and
staff of the Medical University of South Carolina.
New
York Medical College - The goal of this project
is to provide students with an introduction and hands-on opportunity to
incorporate a PDA into their clinical educational experience.
Palm Medical Education - Matthew
Delaney's Palm Powered Expert Guide for medical students.
Palm Pilot
Page - A "high yield-must-have-bare bones"
selection of links from the Medicine-Pediatrics Residency Program at Baylor
College of Medicine.
Palmtop
Medicine - Students and faculty at Virginia
Commonwealth University/Medical College of Virginia are participating in a
palmtop project using HandSpring Visors.
PDA
Requirement - At UCLA School of Medicine, 3rd
and 4th year students are required to have a PDA to enable "point of contact"
access to information resources and to prepare students for practicing medicine
in the 21st century.
Pediatrics On
Hand - Hosted by the Children's National Medical
Center peds residency. Lots of terrific resources here!
UCLA
Family Medicine - Includes information on
various PDAs, essential software, a library of text files, and a list of top web
sites.
UNC-CH School
of Medicine: PDA Initiative - Useful information
for third and fourth year medical students using Palm OS® handhelds
at the University of North Carolina-Chapel Hill.
UW Family Medicine's PDA Resource Guide - Created by the University of Washington Family Medicine Residency
Network, contains lots of great info for all medical PDA users, including links
to PDA web sites, hardware, software, reviews, buyer's guides, software
installation instructions, troubleshooting, tips, and more!
USDSM Palm Program
Site - Developed by the folks at the University
of South Dakota School of Medicine to provide basic information and resources to
assist with the use of PDAs in medical education.
ACP-ASIM PDA
Portal - This site, hosted by the American
College of Physicians-American Society of Internal Medicine, offers a selection
of free documents covering a variety of medical topics.
Alanna's Palm Pilot Page
- An overview of how a fourth-year resident at the University of Cincinnati uses
her Palm OS® handheld, including lists of her favorite applications
and Web sites.
APS Foundation of America Inc.
- This site, hosted by the APSFA offers a selection of free documents, news items, research material and advice on finding doctors profivcient in APS.
DMD-Palm-DDS - A site
devoted to news on PDAs in clinical dentistry.
DocSpence.com - Dr.
Steven Spence is the director of the Blackstone Family Practice Residency in Virginia, and has created a handy site containing a wide
variety of medical informatics links, including handheld
computing.
Dr.
B's PDA - A family practitioner's page of
home-grown Palm OS® applications and links.
Firehouse.com - An
extensive listing of fire/EMS-related PDA links, including a few news items and
case studies (and even a couple of games!)
FP PDA - Free Palm OS® medical software, medical
information, Palm OS® tutorials, links, and more.
GasPalm - U.K.-based site
focusing on anesthesia software for Palm OS®
handhelds.
Handheld Healthcare - A
diverse and well-organized collection of links to various resources compiled by
the Healthcare Information and Management Systems Society
(HIMSS).
Healthy
PalmPilot - The largest collection of
medical Palm OS® databases and documents on the Web.
The Matt
Delaney Page - Matt is a P.A. student who
has written a number of very nice freeware references for iSilo, including guides to interpreting chest x-rays, EKGs, blood
counts, and chemistries.
Medical iSilo
Depot - A collection of more than 100
iSilo documents designed for the medical PDA user gathered from sources far and
near.
Medical Palm Review -
Regularly-updated blog/newsletter hosted by the Technology Application Unit
(TAU) of the Mount Sinai Hospital at the University of Toronto.
MedicalPocketPC.com - You
won't find any Palm OS® information here, but this site is one of the
best for medical users of Pocket PC and Windows CE devices.
MedPDA.net - Created by
MDs for physicians in practice and in training, featuring original articles,
application reviews, news, and answers to common questions.
Meds
PDA - Meds PDA's vision is to provide a
convenient and comprehensive resource for the busy mobile medical professional.
This is also another source for Skyscape
programs.
MeisterMed - Medical
references for the doctor on the go, including CodeMeister, LyteMeister, and
more!
Palm Anesthesiology -
Donald M. Voltz, M.D.'s Palm Powered Expert Guide for
anesthesiology.
Palm Dentistry - Elise S.
Eisenberg, DDS's Palm Powered Expert Guide for dentistry.
PalmMed.sg - The purpose
of this site is to allow experienced users, newbies and everyone in between to
exchange tips on how to maximize the use of your Palm OS® handheld in
the medical arena.
Palm MD - A site devoted
to news related to PDA's in clinical medicine.
PDA
Cortex - Formerly RNPalm.com, this site
has shifted focus to become "the cutting-edge, multidisciplinary community for
the innovators and implementers of mobile informatics."
PDA-Medicus - A
collection of links to freeware medical software and other PDA recommendations
in German
pdaRD.com - "Your #1
resource for everything nutrition, dietetics, and PDAs."
The Pediatric Pilot Page
- Medical files for pediatricians and other physicians who use Palm
OS® handhelds.
PedsPalm.com - The goal
of this site is to be the most complete and up-to-date resource and offer the
visitor an objective view on the best applications and products available for
medical use.
Andrew Yee's Palm Pilot
Page - Includes a free database of nearly
1,000 medical eponyms, available in JFile Pro and Doc formats. Maintained by
Andrew
Yee.
PubMed MEDLINE –EN– National
Library of Medicine's search service to access the 9 million citations in
MEDLINE and Pre-MEDLINE (with links to participating on-line journals), and
other related databases.
CHID Combined Health Information
Database
Produced by health-related agencies of the Federal Government. Titles,
abstracts, and availability information for health information and health
education resources.
Medbot: Emergency Medicine
nine medical search engines including medline,
imagefinder, practice guidelines, drug info/interactions, abbreviation
translator, orthopedic search, evidence based lit, more.
Medhunt –EN– Searches
medical information in a global database including both reviewed and unreviewed
web sites. Searches the Internet and our database for medical sites, for
hospitals, and support.
Dr. Gil Med
Links
–EN– Extensive collection of links for physicians - great
for medical translators too!
Dr. Gil Med
Links
–ES– Extensive collection of links for physicians - great
for medical translators too!
EINet Medical
Index Directory
of medical resources for professionals - enormous!
Hardin Meta
Directory
"Hardin MD is a 'list of lists' - Its purpose is to provide easy access to
comprehensive resource lists in health-related subjects."
ICD-9 web site All about The International Classification of Diseases,
Ninth Revision, Clinical Modification. ICD-9-CM, is a classification system that
groups related disease entities and procedures for the reporting of statistical
information.
Martindale's Health Science Guide -
'98 A
‘Multimedia Specialized Information Resource’ currently containing over 50,000
teaching files; over 124,000 Medical Cases; 867 Multimedia Courses/Textbooks;
1,360 Multimedia Tutorials; over 3,350 Databases, and over 10,300 Movies.
MedEc
Interactive
Excellent gateway, free for physicians, but actually worth the monthly fee for
the PDR interface with Stedman’s Dictionary. Highly recommended.
Medical Informatics
Resources
"...the storage, retrieval, and optimal use of biomedical information, data, and
knowledge for problem solving and decision making."
Medscape Online resource for better patient care. Requires
registration, but membership is free. Access to Medline, medical dictionary,
practice guidelines, more.
MedWeb Large medical directory, under
reconstruction...
MT Desk The mother of all medical resources on the web. Search
engines, glossaries, terminology, drugs, lab information, manufacturers, weekly
updates and MUCH MUCH more.
Laboratory
Handbook
University of Michigan. Links to Abbreviations and Symbols, Drug brand
name/Generic Name, Profiles and Surveys, all kinds of laboratory testing.
Laboratory
Handbook
University of Virginia. "Test listing for clinical and anatomic pathology
laboratories – collection instructions/ interpretation."
Laboratory Pages Laboratory and Medical Diagnostics Industry. Why a list
of laboratory equipment links to suppliers? For the names of all the different
types of equipment! Could be handy...
Renee’s Lab
Supplies
Extensive list of... lab supplies! You’d be surprised when it can come in handy
while translating laboratory manuals.
SWEDISH MEDICAL
RESOURCES
Medicin på Nätet –SV– "Främst avsett
för läkare." Bra medicinska resurser på nätet, både svenska och utländska.
MARS Den medicinska faktadatabasen MARS syftar till god
medicinsk praxis inom hälso- och sjukvården. MARS är Socialstyrelsens medel att
föra ut medicinsk kunskap och kvalitet, jämförelsetal och resultatredovisning.
Medicinska
forskningsrådet
–EN FR SE– "Medicinska forskningsrådets uppgift är att stödja
grundforskning inom områdena medicin, farmakologi, odontologi och
veterinärmedicin."
Life Science
Dictionary
8300+ terms deal with biochemistry, biotechnology, botany, cell biology and
genetics, with terms relating to ecology, limnology, pharmacology, toxicology
and medicine.
US FDA international
homepage The
Information Guide is a quick reference point where members of the international
community, including foreign government officials, embassy officials, and
importers can obtain information about FDA's international functions.
Center for Devices and Radiological
Health Provides
independent, professional expertise and technical assistance on the development,
safety and effectiveness, and regulation of medical devices and electronic
products that produce radiation.
BfArM Bundesinstitutes für Arzneimittel und Medizinprodukte
BfArM Federal Institute for Drugs and Medical Devices
A to Z of sites
where the following keywords may be found: Antiphospholipid Antibody Syndrome, Antiphospholipid
Syndrome, APS, APLS, Hughes Syndrome, Sticky Blood, Clotting Disorder, Stroke,
TIA, PE, deathAntiphospholipid Antibody Syndrome, Antiphospholipid Syndrome,
APS, APLS, Hughes Syndrome, Sticky Blood, Clotting Disorder, Stroke, TIA, PE,
deathAdded 24th July
2008
